What day is it? I am sorry if you are reading this and you are one of the many friends I’ve forgotten to reply to. It has been like groundhog day here, Ariella is now attending nursery school every weekday but only for limited hours. The adjustment for her has been a challenge, the adjustment for me even more so.
It’s been a struggle losing my 1:1 time with Sebastian, having two days a week in which I can spend catching up with all the chores. From simply keeping on top of the pharmacy trips, multiple medicines all organised at different refresh times, to making sure we have food to eat, clothes to wear, feeding the cats, keeping the house generally just moving forward. When you have what equates to a nap time free each day suddenly it feels like you are on the clock, I have certainly dropped a bunch of things and I am so thankful that we have some outside help to keep everything “clean”.
Scattered along the month are weeks where there are hospital visits, this week scheduled an MRI and a Gastro appointment. The MRI went really well, so much less dramatic than last time – which you can read about here. This time a little bit of gas and she was fast asleep, no worrying about cannulation or MRI machines, no fire alarms going off above her, no vomiting, just sleep and actually peace. Of course it’s always a worry when your child is to undergo general anaesthesia but I enjoyed a really nice cup of coffee and we were happy she was in very safe hands.
When she eventually came around she was sleepy but happy, in fact the most distress she felt was from forgoing her breakfast and the nurses observations afterwards. With each check her heart rate would spike until the nurse soon realised she needed to leave the room to get a normal reading. Seeing her little heart rate spike really made me appreciate how anxious hospitals make Ariella and that I should try and remember this whenever she is having a meltdown.
I have of course applied to have her results sent to me ASAP, I’m not one to wait for the next consultant appointment. Looking forward to getting those through, I would hate to attend the appointment and have it sprung on me should there be any significant changes. Fingers crossed that the results come back positive!
Really glad it is the weekend, time to relax a little and prepare for October which will bring more blood tests, a hearing test, a vision test, a new weekly speech and language group and of course Halloween! It’s also going to be time to start visiting specialist schools, which is quite a daunting prospect but I am looking forward to seeing how they can best support Ariella.
As ever, busy, busy, busy…